Skip to main content

Human Rights

Humanitarian visa granted to Cuban child with rare disease

At three years old, the little boy does not crawl or walk and presents symptoms of a rare disease that could not be diagnosed on the island

Crisis en Cuba
Visa humanitaria a niño cubano con rara enfermedad | Fotomontaje: ADN Cuba

April 20, 2023 12:56am

Updated: April 20, 2023 12:56am

This week, U.S. authorities this week granted a humanitarian visa for little Enmanuel, a three-year-old Cuban boy who cannot walk and displays symptoms of a rare disease that could not be diagnosed on the island, confirmed Miami news Channel 41, AmericaTeVe.

According to reports, the child received humanitarian parole while his parents wait for him in Texas, so that he can receive the required medical treatment.

The child's mother, Yamila Cala, said that during the weekend, her mother (the child's grandmother) received an email in Cuba, but that, since she "did not know how to use" digital technology, it was not until April 18 that they, in Texas, were able to read the content of the message.

“He is still hospitalized, but his health, although it is obvious that he is not well, has at least improved a little. There are no words to express the happiness we feel right now. Not just me, all the family members who are here," Cala told the outlet.

Emmanuel has been hospitalized frequently, however, Cuban doctors have not been able to diagnose his condition. At almost four years old, the little one doesn't even crawl and has stomach problems that cause intestinal malabsorption syndrome.

His parents said that when they left Cuba, the minor was not in bad shape and they thought that in a short time they could take him to the United States, but the child's health worsened on the island. Now, with the humanitarian visa, they will be able to fulfill his wish and maybe the little one will get better.

"The only thing I want is to see my son grow up and be a happy child like others, because he sees the other children playing and tells me, look mom, like something he can't do and wants to," Cala told the reporters.

One of the parents of the child or both must travel to Cuba to transfer him to the United States. Several Miami lawyers have confirmed that they will do "everything possible to help this family so that the child arrives soon."

In recent years, it has become common for Cubans to go to social networks to request medicines or humanitarian visas to help save the lives of their relatives in the face of the serious deterioration of public health on the island.